My money situation is finally clear and I know how much money I have to live on each month and what bills I can afford. So far I have managed to keep my car and that is a very good thing. :) Summer is coming on and I am looking forward to the warmer weather and being able to get out more and walk. This winter has been wet and cold and I really haven't gotten out as often as I would have liked.
The animals love the new place and the big balcony with the huge big doors. Nemo scratches at the door like a dog bugs and bugs until I open up for him and let him out there. He can't get down as we on the second floor and there is nothing out there except trees and blackberry bushes. Full of birds the come and go all day long. Lacey also likes the balcony and there is a squirrel that sits in the tree and shouts insults at her. They will love it when the weather is warm and I can just open the doors for them all day long.
Josh and David went to Thailand last September and had a great time. It was the second trip in two years for them and they are already talking about new places to go. I love seeing them travel like this and hope they continue to see the world as often as they can.
Dave's Christina is wanting a trip to Thailand with Daddy and Uncle Josh but she needs to be a bit older yet for that kind of a trip.
She is 9 years old now and a real little beauty. She is a big sister to a brand new baby brother and she is thrilled. She loves Dax and that is the first thing she wants to do when she gets to my place is see if Dax can come and visit too. Dax is now 14 months old and he is such a sweet little lovie.
My health, well let's just say I am maintaining. I see the doctor's regularly and do as I am supposed to. My doctor is happy with me and that is a good thing. I had my regular visit to VGH for the follow up of the last drug trial I was on. While I was there the guys (Jeff and Kirby) decided to do a fibroscan on me since it has been 5 years since I had a biopsy. The results showed that I do have cirrhosis but we already know that. I have ascites which we are controlling with diuretics so far and I have esophageal varices which I have been having banded regularly. The last time was on last Thursday and I am still not feeling great from that. Having a hard time getting food down but the Ensure is taking up the slack and I am doing ok. I am 125 lbs right now and really don't want to fall below that.
Jeff did mention that there could be another drug trial coming up this summer. It is for relapsers like me but he did not have the criteria yet and did not know if they will take patients with ascites and varices but he will stay in touch with me and let me know if anything comes up. Really until they can kill the virus or at least get the virus to stop killing my liver the damage will just continue until my liver fails. So I am open to any and all drug trials as they appear. This one will be a 4 drug cocktail which would include the interferon and the ribaviran along with the two other drugs. Probably a protease inhibitor and another drug. Guaranteed to make me very sick. The problem is can I stay strong enough and maintain well enough to manage a drug trial. One thing at a time and one day at a time. In the meantime I maintain.
Well I am going to try and keep this up now as a record of appointments and such as well. Josh I know you are my only reader so no nasty comments or I will ban you!! :)
March 15 - Ultrasound at Valley Imaging
March 22 - Endoscopy and banding at MSA with Dr. V
March 27 - Drug trial follow up at VGH Fibroscan and bloodwork (Fibroscan 16.5)
Hi Anne,
ReplyDeleteIts Nicky from the forum, love the place, try if you can find the energy to post more I like your blogs and pics.
Nickyxx